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Cystic Fibrosis (Cystic Fibrosis) – Sites of Interest and Support Groups
To learn more about the cystic fibrosis, Passeportsanté.net offers a selection of associations and government sites dealing with the subject of cystic fibrosis. You will be able to find there Additional Information and contact communities or support groups allowing you to learn more about the disease.
Landmarks
France
Beating cystic fibrosis
Created in 1965, this association aims to support patients and their families around 4 missions: cure, care, live better, and raise awareness. It also actively supports research.
Gregory Lemarchal Association
Founded in 2007 following the death of artist Grégory Lamarchal suffering from cystic fibrosis, this association aims to improve the comfort and quality of life of patients and raise awareness for organ donation.
Association-gregorylemarchal.org
Canada
Canadian Cystic Fibrosis Foundation
Founded in 1960, this foundation funds research into cystic fibrosis. The foundation’s goal is to provide resources and information to better treat and manage the disease. Brochures are available online or by order, in English and French cystic fibrosis.ca
Cystic Fibrosis Quebec
This association aims to help people with cystic fibrosis in Quebec, in agreement with the Canadian Cystic Fibrosis Foundation.
aqfk.qc.ca
Provincial Committee for Adults with Cystic Fibrosis
Created in 1985, the Provincial Committee for Cystic Fibrosis Adults (CPAFK) brings together more than 500 Quebec adults with cystic fibrosis. This is a support committee that also aims to promote and defend the rights and interests of adults with cystic fibrosis in Quebec.
cpafk.qc.ca
Quebec government’s Health Guide
To learn more about drugs: how to take them, what are the contraindications and possible interactions, etc.
www.guidesante.gouv.qc.ca
Belgium
Belgian Association for the Fight against Cystic Fibrosis
muco.be
Swiss
Swiss Society for Cystic Fibrosis (SFCH)
cfch.ch
United States
Cystic Fibrosis Foundation
www.cff.org
Azərbaycanda Kistoz Fibroz xəstəliyi ilə məşğul olan , maarifləndirmə vəs işlərini görən yegane təşkilat “Kistik Fibroz Xəstələrinə Yardım İctimai birliyi”dir .