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Muscular dystrophies – Sites of interest and our doctor’s opinion
To learn more about muscular dystrophiess, Passeportsanté.net offers a selection of associations and government sites. You will be able to find there Additional Information and contact communities or support groups allowing you to learn more about the disease.
Landmarks
France
French Association against Myopathies (AFM)
Association created in 1958 by patients and relatives of patients, with the aim of curing neuromuscular diseases and reducing the handicap of those affected.
www.afm-telethon.fr
ORPHANET
The rare disease portal
www.orphanet.Fr/
Canada
Muscular Dystrophy Canada
Association whose goal is to advance research on neuromuscular diseases and to support patients and their families.
www.muscle.ca
United States
Muscular Dystrophy Association
www.mdausa.org
The doctor’s opinion
As part of its quality approach, Passeportsanté.net invites you to discover the opinion of a health professional. Dr Jacques Allard, general practitioner, gives you his opinion on the muscular dystrophy :
My advice is primarily intended for parents who are concerned about the development of their child. If your child has difficulty walking, running, getting off the ground or climbing stairs, seems awkward or falls frequently, it is best to see a doctor, as these conditions could be the first signs of muscular dystrophy. . Once diagnosed, medication and rehabilitation can help relieve symptoms and slow disease progression. Finally, I also recommend consulting a doctor who is expert in genetics. Dr Jacques Allard MD FCMFC |