“Mom, why do I have Down syndrome?” Carolina Philps

The story is full of power and wisdom. And also joy. It would seem, how can the mother of a child who has Down syndrome rejoice? This joy is the result of a great work of the mind and soul. An experience of humanity that can be useful to each of us.

The story is full of courage and wisdom, and this is predictable: otherwise how to survive in such circumstances? Something else is unexpected – she is full of joy. What makes the mother of a girl with Down syndrome happy? How does she do it? Caroline Philps writes about respect: “Love presupposes respect. But we can’t respect a person we don’t understand,” and about how she learned to understand her daughter – and accept: “Accepting (a person or event) does not mean admiring everything indiscriminately or calmly looking at outrages. This means being able to distinguish the important from the unimportant, the main from the secondary. She mastered many special educational programs, thanks to which her daughter learned to read, write, swim and communicate with other people … and Carolina herself learned to put up with the fact that there is a limit to possibilities and that success should not be a condition of love – neither to others nor to yourself. She is honest with herself and frank with the reader. You can learn from her what to do when you want to hit a child! But many are not even able to admit that such a desire can arise, in principle. Her joy is not an accidental mood, but the result of the work of the mind and soul. The experience she has gained can be very useful for other parents with sick children. And also for parents in general. And also for all of us. Because Caroline Philps managed to tell something important about the very essence of humanity, which is not indifferent to anyone who wants to be human and knows how difficult it is sometimes.

TEREVINF, 182 p.

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