Let’s help Marta make it to June. Otherwise everything will reverse [FRIEND’S LETTER]

«For some, she is an ordinary woman, a neighbor, an aunt. For others – a heroine. Those who know Marta, who have contact with a chronically ill person with a disability or know cystic fibrosis, do not believe that Marta is 50 years old. She should be dead for a long time… »- this is how Marta’s friend begins her touching letter to MedTvoiLokona. The hope for the patient is the drug, the reimbursement of which has been announced this year. Unfortunately, before Marta receives it, it will be June. However, the current treatment cannot be interrupted. “Everything will go backwards”, writes a friend, making a fervent appeal: “Let us help Marta make it to June. For her, it means life ”.

1. Cystic fibrosis is a genetic disease. It impairs the respiratory system, and the digestive tract and other organs also cause problems
2. The cause of the disorder is the thick mucus that the body produces, which clogs the lungs and pancreas and is a breeding ground for bacteria
3. Cystic fibrosis is manifested primarily by the slow dying of the lungs. «The sick are slowly suffocating. Maybe not so slowly, because on average in Poland they live up to 25 years. Marta exceeded this average twice »writes Marta’s friend in a letter to MedTvoiLokona
4. In 2022, the reimbursement of the drug for cystic fibrosis was announced. «Patients have to undergo a qualification, tedious hospital procedures. Before they receive the drug, it will be June »- a friend writes
5. The current treatment (monthly cost is PLN 80) cannot be interrupted. “Let us help Marta to reach June”, appeals the woman
6. Check your health. Just answer these questions
7. More information can be found on the Onet homepage

Marta cannot let go, because her lungs will stop functioning

Martha’s life is full of suffering, both physically and mentally, from birth. The genetic disease of cystic fibrosis is manifested primarily by the slow dying of the lungs. The sick are slowly suffocating. Maybe not so slowly, because on average in Poland they live up to 25 years. Marta exceeded this average twice.

She is stubborn, fierce, has the strength of a buffalo, and mentally has to bear as much as war veterans. It is a support and a signpost for other patients. Younger patients imitate it, they draw from it.

Photo Private archive

In this disease, there is no reduced tariff, no leave from rehabilitation, pulmonary drainage, medications, inhalation, or hospital when the condition is exacerbated. Marta cannot let go, because her lungs will stop functioning. Not right away, not overnight, she will choke slowly until the body surrenders, turning everything off in turn. This is how people with cystic fibrosis die in Poland.

Further part below the video.

Without support, Martha’s illness will come back with double power

2021 – the first breakthrough. The first preparation that treats the cause of cystic fibrosis has appeared in Poland (so far, the disease has only been cured). The drug costs as much as a new car (80 is the cost of a month’s treatment). It is not refunded. Marta has no choice. After falling ill with COVID-19, he is already starting to “sit down”. He even travels around the house with an oxygen concentrator. Friends encourage fundraising for this drug. A charity fundraiser is starting. A sea of ​​goodness and open human hearts. We wrote about Martha’s story in the article: “I have been living in a pandemic for nine years. Cystic fibrosis is a terrible torment ».

Photo Private archive

Marta, in a very bad condition, despite the fact that the funds for at least a year of treatment are still lacking, starts taking the drug. She had been waiting for this medicine her whole life. Her condition is improving day by day. The disease seems to have stopped, it even recedes! A breakthrough is taking place! The results improve, from blood, liver, pancreas to x-ray of the lungs and well-being. He achieves freedom of breathing, gains weight, disconnects from the oxygen concentrator – everything happens week by week. This drug really works!

2022 and the second breakthrough. Reimbursement of this drug is announced. A group of about 2 Poles suffering from cystic fibrosis have been waiting for this for years.

Administrative procedures are starting. Patients have to undergo a qualification, painstaking hospital procedures. It will be June by the time they get the drug. But treatment cannot be stopped! The disease will come back with double power. Marta needs about 200 more. PLN to last until June and not to lose the effects of the treatment. Without continuing treatment, everything will go back and attack harder. We cannot let that happen.

Photo Private archive

The war in Ukraine is obviously diverting the attention of all of us. However, we cannot stop caring for those we have cared for so far. Marta also helps others, now she has the strength. He says life begins after “50”.

Despite such a difficult situation for all of us, let’s help Marta. She badly needs the kindness of people – here and now. He only needs funds for a few months of treatment. For her it is life, for us it is a few zlotys.

You can help Marta in her fight to come back to life – details can be found at siepomaga.pl.

Cystic fibrosis is diagnosed at different ages. Therefore, genetic testing is recommended if there are, inter alia, chronic respiratory infections, chronic, persistent and moist cough. If you have such problems, you can use the Cystic Fibrosis Mail-Order Genetic Test available on Medonet Market.

We encourage you to listen to the latest episode of the RESET podcast. This time we were wondering why switching our thinking and acting to slow life is a real challenge? Why is listening to your needs so important? What will it do for us? You will hear about it below.

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